Hearing Loss Education Center

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Hearing Loss Education Center
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Resources for cochlear implant recipients

Resources, organizations and support

Alexander Graham Bell Association for the Deaf
Organization of professionals, families and oral hearing impaired adults, supports auditory and oral communication and education.

3417 Volta Place, NW
Washington, DC 20007
Phone: 202-337-5220
TTY: 202-337-5221
Fax: 202-337-8314
Email: info@agbell.org
http://www.agbell.org/

American Speech, Language Hearing Association
National professional organization which provides general information about hearing loss, hearing aids, assistive listening devices and audiology/speech-language pathology services.

2200 Research Boulevard
Rockville, MD 20850-3289
Phone: 301-296-5700
http://www.asha.org/

American Academy of Audiology
The American Academy of Audiology is the world’s largest professional organization of, by, and for audiologists. The American Academy of Audiology promotes quality hearing and balance care by advancing the profession of audiology through leadership, advocacy, education, public awareness, and support of research.

11730 Plaza America Drive, #300
Reston, VA 20190
Phone: 703-790-8466
http://www.audiology.org/

American Academy of Otolaryngology- Head and Neck Surgery
The world’s largest organization representing specialists who treat the ear, nose, throat, and related structures of the head and neck. The medical disorders treated by these physicians are among the most common that afflict all Americans, young and old.

One Prince Street
Alexandria, VA 22314
Phone: 703-836-4444
http://www.entnet.org/

Cochlear Community
The largest online group of cochlear implant recipients and their families.
13059 E. Peakview Avenue
Centennial, CO 80111
Toll Free: 1-800-523-5798
Phone: 1-303-790-9010
Fax: 1-303-790-1157
www.cochlearamericas.com/community

Hands & Voices
A nationwide non-profit organization dedicated to supporting families and their children who are deaf or hard of hearing, as well as the professionals who serve them.

PO Box 3093
Boulder CO 80307
Phone: 303-492-6283
http://www.handsandvoices.org/

VOICE for Hearing Impaired Children
The largest parent support organization in Canada for families of children with hearing loss. VOICE helps deaf children learn to listen
and to speak through its Auditory-Verbal Therapy Program.

VOICE for Hearing Impaired Children
161 Eglinton Ave. East, Suite 701
Toronto, Ontario M4P 1J5
Toll Free: 866-779-5144
Phone/TDD: 416-487-7719
Fax: 416-487-7423
http://www.voicefordeafkids.com/

HOPE
Cochlear Americas’ HOPE program provides support and resources to parents and professionals who work with children with cochlear implants on the (re)habilitation and educational needs of kids with hearing loss from birth to college. The most comprehensive resource in the field, HOPE includes over90 free online training seminars that cover a range of topics from the parent’s role in language development to using a cell phone with a cochlear implant to the emotional impact of learning that your child is deaf. Guides, videos, tips, and habilitation tools for parents and professionals are available free online and also for purchase.

13059 E. Peakview Avenue
Centennial, CO 80111
Toll Free: 800-523-5798
Phone: 303-790-9010
Fax: 303-790-1157
www.cochlear.com/hope

Hearing Exchange
An online community for the exchange of ideas and information related to hearing loss.

Hearing Exchange
PO Box 689
Jericho, NY 11753
Phone: 516-977-5021
Email: hearingexchange@gmail.com
http://www.hearingexchange.com/

The Children’s Hearing Institute
Good resource for information, testimonials, guides, and family-centered resources.

The Children’s Hearing Institute
380 Second Avenue – 9th Floor,
New York, NY 10010
Phone: 646-438-7819
Fax: 646-438-7844
http://www.childrenshearing.org/

The Oberkotter Foundation
For parents, educators and professionals. Has a network of schools around the nation to get in contact with.
Phone: 800-438-9376
TTY: 800-854-7013
Fax: 503-838-8150
Email: info@nationaldb.org
http://www.nationaldb.com/
http://oraldeafed.org/

Hearing Loss Association of America
A nonprofit educational organization dedicated to the well being of people of all ages and communication styles. HLAA is the largest international consumer organization of its kind. Has state and local chapters.

7910 Woodmont Ave
Suite 1200
Bethesda, MD 20814
Phone: 301-657-2248
Fax: 301-913-9413
http://www.hearingloss.org/

The Listen Up Web!
Cochlear implant information and resources, including: MAPping for dummies, hints, tips and stories from recipients around the world whose lives have been changed by cochlear implant technology.
www.listen-up.org/implant.htm



 
   

Hearing Loss

For hearing loss, refers to less than average ability to hear and understand sounds due to one or more parts of the hearing system not working properly.

Hearing Loss

For hearing loss, refers to problems hearing in both ears, not just one.

Hearing Loss

For hearing loss, refers to problems hearing in one, but not both ears

Mild Hearing Loss

People with mild hearing loss have some difficulty following speech, mainly in noisy situations; quietest sounds they can hear in their better ear average between 25 and 39 decibels (a standard measure of sound)

Moderate Hearing Loss

People with moderate hearing loss have difficulty following speech without a hearing aid; quietest sounds they can hear in their better ear average between 40 and 69 decibels (a standard measure of sound).

Severe Hearing Loss

People with severe hearing loss get help from powerful hearing aids, but often rely on lip-reading even when using an aid; quietest sounds they can hear in their better ear average between 70 and 89 decibels (a standard measure of sound).

Profound Hearing Loss

People with profound hearing loss mostly rely on lip-reading and/or sign language; the quietest sounds heard in their better ear average from 90 decibels or louder (a standard measure of sound).

Otosclerosis

A disease in which bone grows abnormally in the middle ear preventing structures within the ear from working properly and causing hearing loss.

Cochlea

Part of the ear that contains both the organ of hearing (the cochlea) and the organ of balance (the labyrinth).

Feedback

A high-pitched, sometime painful, whistling sound that occurs when a microphone picks up sound from a nearby speaker and replays it again and again (commonly occurs when a poorly fitting hearing aid earmold allows sound to “leak” from the speaker back into the microphone).

Assisstive Listening Devices

Electronic devices or accessories for hearing aids that provide extra help in specific listening situations (telephone, noisy backgrounds, small or large group settings, etc.).

Sensorineural Hearing Loss

Hearing loss due to failure of the auditory nerve, also called nerve deafness.

Mastoid Bone

A portion of the lower skull bone that contains the inner ear.

Rehabilitation

For individuals who previously experienced hearing and get a cochlear implant, the comprehensive training program that “re-teaches” them how to hear and interpret sounds, to recover any lost speech skills, and to properly use the cochlear implant speech processor and controls.

Habilitation

For individuals who had not previously experience hearing and get a cochlear implant, the comprehensive training program that teaches them to hear and interpret sounds, to develop or improve speech skills, and to properly use the cochlear implant speech processor and controls.

Coverage

For health insurance, coverage involves making sure a health plan or policy pays for the cochlear implant device and related professional services (for example, physician and audiology services). Usually, you go through a preauthorization process. This means getting a guarantee from the health insurance plan that they will pay for the implant and services before getting treatment.

Billing

For health insurance, billing involves the process by which health care providers charge, code, and submit their bills (in the form of a claim) to the health insurance company or plan.

Payment

For health insurance, payment involves getting the full amount allowed for services given a health plan’s limitations, allowables, deductibles, and co-payments.

Menieres

A disorder of the fluid volume of the inner ear that can cause hearing loss, dizziness/vertigo, tinnitus (ringing in the ear), and/or pressure or pain in ear.

Meningitis

a viral or bacterial infection that causes inflammation and swelling of the membranes covering the brain and spinal cord; among possible serious complications are hearing loss or deafness.

Mumps

a viral infection that causes swelling of the salivary glands; sometimes spreads to central nervous system which can result in hearing loss.

Measles

a viral infection that causes rash, fever, and cold-like symptoms; sometimes causes complications like ear or brain infections which can result in hearing loss.

Unilateral

on one side, but not the other; used to describe a type of hearing loss in which there is normal or somewhat impaired hearing in one ear and little or no hearing in the other ear.

Unilateral Hearing Loss

condition in which one ear has little or no hearing ability and the other ear has normal or close to normal hearing. Also referred to as Single Sided Deafness (SSD).

Osseointegration

the natural process of bone growing into the titanium fixtures creating a direct connection between an artificial implant and living bone.